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The different types of dementia and how to recognise the symptoms

By 10th December, 2021 Care, Care Home Comments Off

The word dementia describes a set of symptoms such as memory loss, difficulty concentrating, confusion and forgetfulness. Dementia is caused by diseases that affect the brain. Here we look at the different types of dementia and the common symptoms.

ALZHEIMER’S DISEASE 

Probably the most well-known and common form of dementia. With Alzheimer’s connections between brain cells are lost because of the build-up of proteins which build abnormal structures. It is a progressive disease and over time more parts of the brain are damaged, as this happens symptoms worsen and more develop.

Common symptoms

Memory: problems with memory may occur such as losing things, forgetting names, getting lost and difficulty recalling words.

Speech: you may find that people repeat themselves or say a different words to those they mean.

Concentration: difficulty concentrating or organising, this can make everyday tasks challenging.

Orientation: it’s quite common for people with Alzheimer’s disease to forget where they are and get lost or not remember the day or year.

Mood: mood changes are common in the early stages, and you may find they become very anxious, depressed, or easily annoyed.

VASCULAR DEMENTIA

This is the second most common cause of dementia. Some people have both vascular dementia and Alzheimer’s disease which is called Mixed Dementia. Vascular dementia is caused when inadequate blood flow can’t get to the brain due to diseased blood vessels.

Although memory loss is common in most types of dementia, it’s not usually one of early symptoms of Vascular dementia.

Common Symptoms

Concentration: people may have difficulty concentrating or organising, following simple steps and slow thought processes, this can make everyday tasks challenging.

Speech: people may become less fluent in their speech.

Mood: mood swings are also common in the early stages you may find people become anxious or depressed; this may be due to them noticing the difficulties of the disease.

Physical: loss of bladder control is common in people with subcortical vascular dementia, and they also become prone to falls often due to weakness in the body. People with post-stroke vascular dementia may have weakness or paralysis in a particular part of the body dependant on which part of the brain was affected.

 

FRONTOTEMPORAL DEMENTIA 

This is one of the less common types of dementia and you may know it as frontal lobe dementia or Pick’s disease. It’s caused when there is damage to the frontal or temporal lobes of the brain.

Common Symptoms

Behavioural variant FTD causes problems with behaviour and personality.

Primary Progressive Aphasia causes language problems.

 

MIXED DEMENTIA 

About 1 in 10 people with dementia have mixed dementia, this is when they have more than one type of dementia. The most common form is Alzheimer’s disease with Vascular Dementia.

Common Symptoms

The symptoms are a mixture dependant on the mix of types of dementia, most commonly you’ll see one set of symptoms is more dominant.

 

LEWY BODY DEMENTIA 

Dementia with Lewy bodies is caused by clumps of protein (Lewy bodies) in the nerve cells of the brain. Approximately 1 in 10 people with dementia have this.

Common symptoms

Concentration: problems staying focussed, making decisions and memory loss.

Hallucinations: these can be visual; seeing things that aren’t there which might be shapes, animals or people or auditory; hearing sounds or evens smelling or feeling things that aren’t there.

Sleep: problems can occur with sleep, both disturbed sleep at night and falling asleep very easily during the day.

Physical: you may see problems such as stiff limbs, limited facial expressions, being unbalanced and having difficulty walking.

There are also some rarer causes of dementia such as Huntington’s disease, Parkinson’s disease and Creutzfeldt-Jakob disease (CJD), approximately 1 in 20 people with dementia in the UK have a rarer type and symptoms can vary.

With most types of dementia however, the symptoms usually start off mild. They progress very gradually, and if you have them, you may not notice them. Dementia symptoms are different from naturally slowing down as we age, occasionally forgetting things and our thought processes generally slowing, as dementia symptoms are caused by disease. Because of this it can be hard to recognise the early stages in a friend or loved one. If you’ve noticed that a person is struggling to remember what they did the day before, is forgetting names of objects or people or perhaps they are repeating things over and over then it’s a good idea to encourage them to see their GP.

Lifting the Stigma on Elderly Care

By 22nd October, 2021 Care, Care Home Comments Off

It is a fact of life, from the moment we are born, we start getting older and if we are lucky enough to live to an old age, it is likely we may come to a point where we can no longer care properly for ourselves and we may need some extra support. And yet this is something none of us want to admit or even think about, but if we are all going to need it, why is there such a stigma around elderly care and what can we do to change future perspective?

 

Perhaps, by thinking negatively about getting old and frail and not being able to look after ourselves we are the problem. Constantly in the media and movies, people in older age are depicted negatively, whether it’s as a burden to the family, or someone who is unable to look after themselves, the older generations do not get painted in a good light. And yet so many of us are staying healthy and active into our older years and nothing like the old frail image portrayed by the media.

 

And so, if we focussed on positivity and promoting healthy living and wellbeing, using positive images of those in their older years enjoying independence and living life to the full, perhaps we would be able to adjust the perception of getting old.

 

And yes, there may come a time when we need a bit of extra support to look after ourselves. And this is where the care industry needs to step up. Treating each person as an individual, supporting their needs and wishes and getting to know them will help to ensure they are cared for in a compassionate and dignified manner.

 

We continue to promote person-centred care and maintaining independence in our home. We want all our residents to feel like they are at home, not in a stereotypical care home or “God’s Waiting Room” as they are so crassly referred to at times. We create a family home environment by including our team in the daily activities and entertainment. We also find activities and outings that are personal to our residents, for example we have one resident who used to be a boxing promoter so we take him to the local boxing gym. Another resident has given us tennis lessons while others enjoy a trip to M&S.

 

Getting old doesn’t have to be a sad and lonely time and we feel each of us plays our own part in removing the stigma around elderly care – come and see for yourself – our warm and friendly home will hopefully change your perspective on how growing old should be!

 

When is the right time to choose a care home?

By 17th September, 2021 Care, Care Home, Dementia, Family Related Matters Comments Off

It feels like there is never a right time to choose a care home, it’s a daunting and scary thought for most people, and generally it is left until the family cannot cope with the care requirements of a loved one anymore and then there is a panic to try and find somewhere with a space.

Our advice would be to prepare well in advance of a loved one needing a care home. At this stage they can even be involved in the decision-making process and you will have a greater choice of homes available to you. As you will have time to be on waiting lists, plus you will be able to get to know the home much better. The more open you can be with your family and able to discuss plans, the easier it will be when the time comes to transitioning into a home.

If the home is for you, let them know what you want, where you might like to be and the types of activities you might be interested in doing. Get to know the homes you are interested in and ask to be kept on their mailing list.

We always welcome as many visits as possible for the new potential resident and their family to get to know us and the home. We like potential residents to feel familiar with the home and comfortable in the space. They are welcome to join in activities with us and stay for periods of time to really understand what it is like to be one of our residents.

When choosing a home, try to take your time, ask lots of questions about the day to day running of the home, how they care for residents and the activity programmes they run.

At Fairdene our focus is on person-centred care, this means that we get to know each of our residents on a personal level, not just the medical care they require, we like to know what hobbies they enjoy, the job they used to do, the family they have and what makes them happy. We use this to put together meaningful activities for each resident. For example, we have one resident who used to be a boxing promoter, so we take him down to the boxing gym to see everyone and watch some of the action. This is an activity he really enjoys but is personal to him – not everyone is going to want to head down to the boxing gym!

If your loved one has already had a diagnosis of a condition that is likely to affect them into their later years such as dementia, you might like to look at care homes that specialise in that condition.

As a dementia care home, we continually research the latest on dementia care and continually look to improve our home and dementia care. We have our own in-house chef to offer the most nutritious food and ensure there is healthy food for residents to help themselves to around the home. We offer jelly drops to ensure everyone stays hydrated. Each resident is encouraged to bring a memory book with them which has photos of friends and family and things they like to do. We love sharing these with the residents and hearing their stories of days gone by.

With a diagnosis of Dementia, it might be years before the person affected actually needs a care home, however the time will come when they are no longer able to look after themselves even with the help of carers, friends and families. It would be at this point that you would need to consider moving to a care home.  In our opinion though, it should be before this point that you discuss the care home and look at the different ones available in order to know which care home is best suited to your loved one.

You might be able to register your interest and the home could keep you updated on availability as the time approaches. It may feel like a sad and scary step, however from a positive perspective, your loved one will be getting the care they need which means that you will be able to focus on your social relationship with them and it can really help to reduce the stress and tension that sometimes comes with being someone’s full-time carer.

 

Fun and rewarding activities for those with dementia

By 7th June, 2021 Care, Care Home, Dementia, Family Related Matters Comments Off

Caring for a loved one with dementia can be frustrating, it can be lonely and at times it can feel monotonous. This in itself can start to have a detrimental impact on your relationship, and it is so important to try and not let dementia come between you.

We’ve put together a list of activities you might want to think about to break away from the frustration and monotony and think a bit differently about how you can keep your friendship going.

Finding engaging activities can help to reduce symptoms associated with dementia such as agitation, anxiety, depression and anger.

  1. Fold towels

Now, this might not seem like an exciting or an engaging activity, however the need to feel useful continues throughout our lives and by giving those suffering with dementia an activity where they feel useful and purpose is a great way to boost self-esteem. It doesn’t matter how well the towels are folded, your loved one will feel they are contributing to the household and you are getting some of the housework done! At Fairdene Lodge, we regularly ask our residents to help us pair socks, and they love getting involved and feeling helpful.

  1. Create a memory box

We actively encourage our residents and their families to create memory boxes and books. They are great conversation starters and can help residents feel connected to their past career and hobbies.

With a memory or rummage box you can fill it with things they might have used at work or objects from hobbies. For example for a boxer, they might have a boxing glove or a gym towel. Someone who enjoyed baking might have measuring spoons, a whisk or a wooden spoon.

You can use this for any type of job or hobby, you might just need to be creative about finding objects that are safe to handle.

  1. Make (or buy) a personalised puzzle

If you want to get creative you could print a favourite family photo, that has a special meaning for your loved one. Laminate the photo and cut it into four (or more) puzzle shaped pieces to make you own personalised DIY puzzle. Alternatively, there are lots of sites online where you can buy a photo puzzle.

  1. Music

Play your loved one’s favourite songs or albums from their youth. Encourage singing and dancing. It’s amazing how a song can take us back to a certain time or memory. We have Alexas in all our residents’ rooms loaded with their favourite music and stories.

  1. Reading

You could read to your loved one, or perhaps they might enjoy an audiobook. Find things that are easy to follow and capture their interest.  Reading aloud is a great way for those with dementia to interact with children.

  1. Nature

Get out for a walk or use a wheelchair to get outside and breathe the fresh air, listen to the birds and take in the scenery. We love getting our residents out and about. We offer walks along the seafront, or rides with the Pedal People. We visit garden centres and shops, parks and cafes. We are so pleased the restrictions are lifting and we can get out and about again.

  1. Animal Therapy

Holding or petting an animal is so relaxing and we’ve seen the benefits in our home when we’ve had various furry friends to visit.

Routine is great for those with dementia, however if it is having a negative impact on your relationship, you need to change it up a little. Hopefully this article has given you a few ideas on how you might do that.

Rebuilding out of COVID-19

By 5th May, 2021 Care Home, covid-19 Comments Off

As lockdown begins to ease, this might be the first time you are able to see your relative with dementia this year. With such a long time apart changes in their condition may be more apparent and trying to ensure COVID-19 guidance is followed may be particularly hard when your focus will be making sure the person with dementia is as safe and comfortable as possible. However it is important that we continue to stick to the rules to try and ensure we don’t have to deviate from the current roadmap.

The biggest news must be the ability to now visit loved ones in their care homes. This can be two visitors (one at a time) on a regular basis (ie the same two people must visit each time). This brings with it another set of challenges… what if your mum is in a care home and you are one of three siblings, how do you choose? How do you explain to your mum, when communication is more difficult, that one of her children isn’t allowed to visit. Although not perfect, it is progress and we will continue to arrange video calling for all those who are unable to visit for whatever reason.

With the widespread launch of free lateral flow testing, we hope that COVID-19 is coming under control and we will continue to test our staff regularly. We will also ask anyone entering the home to test and await their result before they are allowed to enter. Please bear this in mind if you are coming to visit, that you will need to arrive 30minutes prior to your slot to allow time to take the test and await the results.

For the foreseeable future we will continue to live with restrictions to protect the NHS and continue to save lives, so how can you start to introduce the “new normal” and begin to socialise once again with your loved one with dementia?

  • Embrace the time you do get to spend together, bring photo albums and reminisce about happy memories. Photo albums can be a great source of stimulation and will help not only reminisce but keep your loved one in touch with what has been going on in the family during the various lockdowns.
  • Use music to help stimulate conversation – play a favourite song or a song that takes you both back to a special event or place. Whenever I hear the lambada it always brings back a memory of my nana and grandad dancing on a warm sunny evening. It’s amazing how a song can take you right back to a moment in time.
  • Get outside together, whether this is a walk along the beach, in a park, or perhaps there is an activity you enjoy together like painting in the garden, or a spot of tennis. Activities give your loved one a sense of purpose and belonging.
  • Lockdowns have given even greater focus to technology and not everyone finds technology easy to use. It might be better to have a telephone call, rather than increase stress with new technology if your loved one hasn’t got the help they need. It is a good idea to call at regular times of the day to build a routine.
  • You could also send things through the post to help with the continued feelings of isolation – the world is opening up, but it is slow and the feelings of loneliness continue. This could be a letter or a card, or perhaps you could put together a photo book with descriptions and messages from other family members.

With all the new rules and regulations and COVID-19 guidance, remember this may be confusing and worrying for someone living with dementia. Continue to be understanding and patient and help them through the transition period to when we can hopefully all be together again.

COVID-19 and Dementia

By 29th March, 2021 Care Home, covid-19 Comments Off

There has been lots of talk in the press about the “forgotten victims of Covid” referring to school children and their education. Without doubt, they need more support and the make-shift homeschooling was no replacement for in school learning.

 

Working in the care industry we feel those suffering with dementia have truly suffered during the pandemic. If you read the research on dementia and reducing the affects, you will see the majority of advice and research shows the benefits of a routine and socialisation, both of which have been taken away to protect the vulnerable from catching COVID.

 

It’s a double-edged sword – on the one hand we need to protect people from catching COVID and potentially dying, however for those with dementia the loss of routine and socialisation may increase their dementia symptoms. In fact, the findings of a survey conducted by the Alzheimer’s Society of people with dementia and their carers, stated 82% of people reported an increase in symptoms among people with dementia after the March 2020 lockdown.

 

This was attributed mainly to a lack of cognitive stimulation and loss of routine. In the lockdown environment, we are no longer able to take part in stimulating or meaningful activities such as attending support groups or walking groups and are therefore limited to more mundane tasks. This has negatively affected people with dementia in terms of their illness and their self-worth.

 

For us with the care home, we are lucky we can continue to socialise amongst the residents and we have a full entertainment programme to encourage interaction and general merriment. We can maintain the residents’ routine as much as possible, obviously anything that was part of their routine outside of the home has been reduced or stopped however we are currently still getting out in the fresh air.

 

For those at home with dementia, the past 12 months must have been so difficult, unable to see friends and family. Not able to go out and do normal activities like shopping, meeting a friend for coffee and cake, or sports. It really has taken its toll, Over a quarter (27.5%) of people who died with COVID-19 from March to June had dementia.

But now we look to the future and how we will transition out of a lockdown situation. For the majority of us, we are excited to return to some sort of normality, but for those with dementia the outside world may not be the familiar surroundings they remember. For example, different shop layouts and processes may be disorientating. Signs and floor markings could be confusing and people in masks might be unsettling and/or difficult to understand. With numerous new rules to follow to keep everyone safe, this is something else to worry about, and also how others might react if they were to get it wrong.

 

In order to have an easier transition out of our current lockdown status, it is essential that those with dementia are supported by carers, services and the wider society. It has been reported that after the last lockdown those with dementia felt forgotten and abandoned and generally felt there was a lack of support when exiting the first lockdown.

 

So when we are out and about and continuing to follow the social distancing guidelines, remember that there are people in our community who might not be able to wear a mask or understand why they need to wear one. In a shop, there might be people who find it hard to follow the signage or understand they need to keep their distance. We need to remember to treat these people with patience, kindness and compassion.

 

We hope that all the dementia friendly practices that had been adopted by many shops before the pandemic such as clear signage, and staff who are trained to support customers with dementia can continue. We need to include and consult with people with dementia to develop communication and processes that promote their wellbeing and social inclusion and help them to live in world that might not be as familiar to them as it was before.